I have been
wanting a hysterectomy since I got my first period. It wasn't the normal hate
for periods that most pubescent girls experience but rather a loathsome fury
that spread throughout my entire being- I was entering womanhood and nothing
could have been worse, especially since I am a dude.
Sadly
transmen still get their periods and while testosterone can stop menstruation
or at least make it less intense, it is still a tragic fact of life. There were
several incidences where I had to leave school or work because I randomly
started bleeding even after being on hormone therapy for several years. I
wanted a hysterectomy badly and in 2012 I thought I had my chance. Long story
short- I had an exploratory surgery where the doctor removed part of my equipment,
but insurance refused to pay for a hysterectomy even though I had PCOS and
Endometriosis that caused a lot of pain. They were insistent that I would
change my mind about this "whole transgender thing" and someday I
would want children; no one has ever been so wrong about me. Just sayin.
Fast
forward to summer 2016- I was working with an amazing provider who helped me
apply for Medicaid since I was unemployed and once that went through, she sent
me to an OBGYN to see about getting a hysterectomy. Now as most men will tell
you, one of the most awkward feelings is having to walk into a female only
space as a man; it's even worse for transmen who actually have to have that
service. I could feel my face turning red as I walked into the office and approached
the front desk. My appointment with the surgeon was only slightly better but at
least I was in a private room away from the lobby. The surgeon and her staff
were really nice to me and appeared to have some idea of how to handle a
transman. They all worked incredibly hard on my case and with the insurance
company to get a hysterectomy and a labiaplasty covered which paid off. The
surgery was set for October 15th at Providence
Hospital.
At this
point in time some personal issues led me to moving in with my girlfriend after
only two weeks of officially going out- talk about your U-Haul dating- although
we had been hanging out and getting to know each other for about 10 months
prior. Liz, my girlfriend, said she would take care of me and help me through this
process, and I was grateful for all the support I could get. The morning of
surgery we went to the hospital and checked in. Liz helped keep me sane as I
prepared for this massive change inside and outside of my body. I had no doubts
about what I wanted but was ready for the surgery aspect to be over. I spoke
with all the important people to review what was going to be done, and I was
surprised at the level of kindness by hospital staff. No one misgendered me or
made me feel uncomfortable despite it being an uncomfortable situation. I
kissed Liz goodbye as they wheeled me away to finally get my insides ripped
out. HALLELUJAH!!!!
Waking up
is generally the worst part of my day as is but this wake up was the absolute
worst I have ever experienced. I felt horrible pain in my genital, pelvis and abdominal
regions with a twinge in my lower back. My throat was dry, and I was blind
without my glasses. For a moment I thought I had woken up during the surgery
but luckily I was just in recovery with a loopy mind. I asked for more pain
meds and for Liz as the pain was excruciating, and I needed some serious
comfort. I barely got the first request. I spent several hours in recovery
before being wheeled to my room as we had to stay overnight. I could not get
ahead of the pain; it hurt to move in any way, shape, or form. The nurses said
they were giving me the maximum dosage they could as often as they could but
nothing touched the pain. I eventually discovered that using the bathroom was
the worst idea ever, and it sent my pain level skyrocketing! Morphine only made
me nauseated without any pain relief so I laid there in agony and boredom until
the following day when friends came to visit; then I was only in agony.
The pain
probably wouldn't have been so bad if I only had the full hysterectomy (removal
of the uterus and cervix) with bilateral salpingo-oophorectomy (removal of fallopian
tubes and ovaries). However, I also had a labiaplasty, commonly known as a
labial shave, which is the removal of the labial skin in the genital region. My
surgeon removed the inner labia and exposed more of my enlarged clitoris; this
was where the majority of the pain radiated from. I had to have help from Liz
in order to even look at what was going on down there, and it was terrifying to
see; I had stitching on both sides of my labia from my vaginal opening that
went up and around the skin above my clitoris. Everything was swollen, and I
was regretting my decision to have that done. It hurt to use the bathroom, to
sit, to walk, to shower, to lay in any position but on my back (I'm a side
sleeper), and even to adjust my gown or blanket. The only relief was one of the
nurses bringing me extra sugar-free popsicles at every opportunity because she
felt bad for me.
Going home
was not much fun either; a car ride has never been so incredibly painful. It
didn't help that I wasn't going to my home but rather was going to Liz's dad's
house which is where we were now living, and this was my first night there-
after major surgery. I was so anxious on top of being in pain that I am sure
Liz just wanted to hit me upside the head to knock me out. She was loving and
patient with me though and got me upstairs into the comfy leather recliner, put
on season one of Game of Thrones (my friend Josh loaned me all 6 seasons for my
recovery time), got me some Jell-O, watered me, and gave me my pain pills. Liz
was with me 24/7 for the first three weeks of my recovery as she was between
jobs, and it was the greatest blessing I could have asked for outside of the pain
going away. She catered to my every need and did extra research to figure out
how to make me feel better. She had to help me get up, sit down, use the
bathroom, lay down, walk, and bathe. She would sit on the edge of the tub
lightly rubbing my shoulders while I used the bathroom because the pain was so
intense that I would sob uncontrollably, and her presence was the only comfort
I had. We crossed many boundaries in the first few weeks of our relationship
that many couples probably never consider. She has seen me at my very worst and
weakest point. Once I was able to move a bit she let me pick out a new bed for
us that she paid for. She only had a twin bed at the time and two bigger adults
trying to sleep on that was hilarious and painful. We actually had to put air
mattresses on the floor to sleep on because I couldn't get in or out of bed due
to the stitches. Liz helped me clean my incision areas and took pictures for me
so I could see the healing and pinpoint the painful areas to show my doctor at
my follow ups. She even got me pot because pharmaceuticals made me sick and
barely helped the pain. Pot took away all my pain, helped my anxiety, and
helped me sleep through the night in ways that other medications couldn't even
compare. Liz helped me through it all. She was a trooper, and I fell madly in
love with her in a way I have never loved anyone before.
The
recovery process took far longer than my surgeon said it would. Being diabetic
made the healing process go incredibly slow, and I felt impatient to say the
least. Some of my stitches had to be cut out early because they would partially
dissolve then snag on another stitch causing sharp pain that kept me from
walking. We found that ice helped the pain and swelling but unfortunately we
didn't have an icepack which led to using "coochy corn"; we used what
we had. Liz also learned about sitz baths which is a shallow bowl filled with
warm water that cleans the genital area. Once we started doing this on a daily
basis it really helped foster the healing process. I had to do this for about
8-9 weeks. I still had occasional pain and discomfort for five months after
surgery; some of which was associated with sexual intimacy.
Sex was
greatly impacted by the surgery. Liz and I couldn't do anything more than
cuddle for 9 weeks. It was difficult to resist the temptation, but my body
couldn't handle it. Once I got the go-ahead from my surgeon, we were all about
trying out my new pussy. Unfortunately there were still some issues and often
we had to stop due to pain. The few times I was able to continue though were
pretty amazing. I had new sensations in my skin and in the newly exposed areas
of my clitoris. I also didn't have the throbbing pain when experiencing
penetration like I had before surgery. Once my body was fully healed our sex
life took off like a racehorse and is still going strong. Sex happens 5-10
times a week which is incredible for me as my past has been pretty
disappointing in regards to my sex life.
Looking
back I can't say if I would go through the labiaplasty again as it was
excruciatingly painful, but I would have the full hysterectomy with bilateral
salpingo-oophorectomy again in a heartbeat. It has made my life easier with
less pain and worry. My testosterone dosage hasn't changed, but I don't have
some of the side effect issues I had prior to my hysterectomy. I feel more
masculine in my day to day life and don't have the constant anxiety about
starting my period randomly. My sex life is more fulfilling, my confidence is
up, my depression is down, I got to know Liz intimately quite quickly, and I
have grown in my love and appreciation for the wonderful woman that she is.
If you are
seeking a hysterectomy, make sure you do your research on your surgeon, after
care, and pain relief options. It is also incredibly helpful to have someone
with you before, during, and after surgery whom you are comfortable with. Most
important though- make sure this is what YOU want for YOU and not something you
are doing for someone else or because you think you should. This procedure will
change your body and your life; be sure you are ready for it.
It's been amazing to watch you grow and change as a human being, to see you stay the course on your personal journey; and to see you achieve the happiness in love you so richly deserve Danny....
ReplyDeleteThank you for helping to educate others by sharing your personal experiences...
Love You! Mama Case....
I'm so very happy for you and horrified that you couldn't get a hysterectomy just on the Endometriosis diagnosis alone. I'm glad you found the right people for your surgery and so very very glad that you have Liz.
ReplyDeleteLove, Eitel